First, you should join the facebook support group, not only for help but to be counted, seen and heard:
https://www.facebook.com/groups/44406735710/
Here is an excellent forum where I first found help:
https://www.tapatalk.com/groups/guestfr/
Next, here is a link to the ENS Association: ensassociation.org
Here is a great list of related material: http://nasalcripple.com/?view=custom&categories=2
emptynosesyndrome.net
and here is the Wiki page:
https://en.wikipedia.org/wiki/